Showing posts with label downs syndrome:new babies. Show all posts
Showing posts with label downs syndrome:new babies. Show all posts

Sunday, March 08, 2009

lightning, assessments, and Aubrey Jo

I started this earlier, but lightning crashed outside, causing Lucifer the Cat to jump from outside on the deck, to inside on the couch in one flying leap....and then the rains came. Hard rains, knocking out satellite computer and Oswald on television (OHHHHHHH NOOOOOOOOOOO) We're dodging the tornadoes up north (knock on wood) and just getting some violent rain storms that are short in duration.

Spring is FINALLY here, and the grass seems universally greener after a 10 minute monsoon. YAY! IT SMELLS SO GOOD!! My yellow daffodills are opening, and there are buds on everything else.

We are celebrating but tired here...miss Aubrey Jo has come to rock our world for the weekend. She's very comfortable at grammy's, but wouldn't sleep anywhere but WITH grammy. We snuggled on the couch all night...she stirred a couple of times, but with a few pats on the diaper, she'd drift right back off. Being acutely aware of her new found gymnastic abilities, and the speed in which she can pull them off...grammy didn't sleep too soundly.

She has changed so much!! Dang the ice storms!! I last saw her as an infant, and she returns 4 weeks later as a rug rat!

She is a dancing baby, imitates sounds i make,patty cakes, signs daddy and more, laughs, pulls ups and walks around cruising, stands independently for a few seconds..and can FLY on her hands and knees!!

She will make the "scrunch face" atcha:


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WHEN DID THIS HAPPEN!! She's still quite small, making her antics even funnier as she is now the 'walking infant'

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and ohhhhhhhhhhhh she loves her food...in fact, if she hears someone in the kitchen, or spoons rattling, or cupboard doors being opened?? she is ON IT! LOOK OUT MOLLY...she's diving in for your fries!!

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Also? she is quite tasty

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She came with a packNplay, but currently molly is in it, and against all of bree's parent's warnings, SHE is not.... but has run of the house (bathroom doors closed) and she's loving it! She runs down to see grampa in the radio room...chases the cats, and loveeeeeees sarge the german shep. He just makes her squeal! There is no taking your eye off of her...not for one second. I think also, i may rename her "woomba" as even though i've vacuumed 37 times, she still is finding things to pick up and put in her mouth. Yes, Gabe, the dog food dish is secured on the back porch!

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I am so amazed by her sheer sharpness. She doesn't miss a movement, she doesn't miss a sound. Her eyes flit and scan and move her to the next escapade. I don't think I'm seeing her in such amazement because molly was so laid back as an infant, either....I think I'm amazed....because she is amazing. I see great things happening for this curious little girl.

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We did have molly's assessment Friday...to see if she's on the Autism Spectrum. The interviewer came while moll was outside playing, so we had some time to set up before calling her in. The first thing molly does is run over and give her a big hug! BLASPHEME!! SHE NEVER DOES THIS! lmao...i believe molly thought the lady was shauna, as she was young and had beautiful hair!

She filmed the eval while running thru several tests. After she left, i realized i had answered some questions wrong...YES, she does repeat words consistantly...CAT CAT CAT CAT ...should i email her? Why i am so worried about things that i forgot to say....do i WANT her to be Autistic?

Nope

Thanks to Maria, who is dealing with many of the things we are....i want answers. In my heart i would rather not have the label, but i WOULD like some answers. Those answers won't happen for a month or so. It's a long process. I just know there is a magic key to unlocking molly's intellegence, as there is no doubt that it is there, and whether or not the key lies in a diagnosis on the spectrum, or someplace else...we will keep working until we find it. Molly has many contributions of her own to make.

I will end with my frustration/chuckle of the week.

The school sends molly home all the time. She is "out of sorts" or "pushing" or "has an ear infection" (she had a bad case of wax)" "has pink eye" "maybe the flu" and it's just CONSTANT!!!.... to the point that I was beginning to think that maybe molly is just too hard to handle, and it's easier to send her home than to deal with her. And what am i to do? Tell them she doesn't have an ear infections, or take her to two dr's to make sure. Tell them NO, we will not pick her up no matter what YOU think????


Today I opened a warning notice from the school. She's missing too much!

UGH!!

Off i go...the woomba is heading for my bedroom, which is referred to as the 'toy room' by the sarge anyway....too much FUN! OH LOOK, she's found mama and dadda...and is signing with thumb on her head...and saying mum mum mum (shhhhhhhhh don't tell ally)

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I'll leave you with 4 generations (with one crooked little finger) of hands,
and hopes that spring EXPLODES in your area..the way it has ours...Don't forget to spring those clocks ahead, either!

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Sunday, September 16, 2007









Here's little PJ!!






yea yea...i know...you've seen him..ive put him up on my myspace...emailed him around to my friends that don't know them....called people! talked about him at work!! why???...i don't know..


but just LOOK at him! Look at those 'brand new to the world' eyes....SEE THE LOVE...oh man..i can just FEEL it!



There has been SO much strife lately...


losses of children to cancer...


the anniversary of 9-11 and thus of Larry's mom (who just dropped the morning after 9-11...like the shock was too much)


the loss of life in iraq.....and the sheer FRUSTRATION over THAT mess...

so much SAD...that for some reason...this little guy just has SLAPPED me upside the head and said..."I'M HERE! IT'S LIFE! I'ts NEW LIFE! " just CELEBRATE!!


and i feel like spring has sprung all over again.


God Bless you, Daniel and Kathy and your family.

Thank you for getting the results of the test and saying YAY! we're having a BOY! with DS!



I SO know how you felt when we got the news...almost 8 years ago now.....i was off my guourd....but only for a couple of hours....but then?? i said YAY!



New babies...

New Life...

and NEW HOPE

hope for the world.

THESE babies especially offer hope for a new world...a world of acceptance...a world of understanding....and patience...and pure unconditional love. This is what they BRING to us! and maybe, just maybe...we'll take the time to learn.