Friday, July 25, 2008

meet me in saint loueeee baby, meet me at the fair

ok-a mid week blog.

it has to be, as I'm hoping to be in Springfield taking over baby duties this weekend, and there is NO typing with miss Aubrey on duty. All 4 grandparents gave the new parents a weekend off last weekend...we DO keep them BUSY!

I should be a pro by now, but this is what Molly Kate did Tuesday:


Yes, that is what is left of a 32" LCD television...Yes it was secured...yes it was IMPOSSIBLE to tumble down...we have to two-man struggle with it when it's time to clean under it. No she was not hurt badly, but hopefully hurt bad enough to TEACH HER!!...and yes, i am mortified, too!!

Miss Monkey Butt just WAITS for us to be inattentive...Heaven forbid we have to go to the bathroom!! This is the life of a child with special don't even chance a quick trip to the loo.


I was speaking to the rep from our "people" here regarding respite care, (she prob thinks im goofy) i thought it would be nice to have an occasional night out....but really NEEDED someone here to watch molly, so that i could accomplish things. Simple things...getting the house cleaned...taking a bath, mowing the lawn, things that the 'others' think of as mundane chores, i would RELISH having the chance to complete, just one time.

And through the worst of the worst (e.g. the television) we are still proud she has the ability and "problem-solving techniques" to figure out how to solve the impossible and achieve it! I just wish she would use her prowess to VERBALIZE....grrrrrrrrrrr

So, the TV disaster happened Tuesday at the end of my shift...the sarge calls and says..."pick up another TV on your way home"

????????????????? his calmness in these situations amaze me.

Wednesday at the end of my shift?? another phone call from him:

"pick up a new monitor for your computer"

JEEEEEEEEEEZ LAWEEEEZE...i am in LCD Hell this week!! can you say cha CHING???? Officially I have spent more at Walmart in Two Days, than i made in TWO WEEKS!! EEEK!!

Such a let down after such a wonderful weekend! We ran up to ST Louis to meet up with some moms...who all happened to be in the area at
the same time...they were there friday, and we came up Saturday and missed almost ALL of them!

All but Beck and Belly...and Karen and Mary from Chicago.


Us seasoned missourians stayed in the motel pool, and at a well treed park and had a BALL!! (july in St Louis is NOT the best month to venture outside for any length of time) The sarge even passed on seeing the Cards Play! now THAT'S HOT!


We didn't get as much 'mommy chat time' as i would have liked, but got to watch our same-aged girls play and interact. It is so nice to allow our kids to run and play among THEIR peers! And FYI to you typpies out there...our kids with DS are very unique individuals...if you know definitely do NOT know them all. They may have similar, beautifully almond shaped eyes....but it ends there! Our three girls were as different as colors in the rainbow, but nonetheless sparkled just as bright.


It's wonderful to chat with like-mommys too...we can talk about pull-ups to another mom of an 8 year old, whose jaw doesn't drop in SHOCK, but offers better solutions for the night time problems. It's soooooooo good to be among friends and peers.


If you've been hesitant about having an IRL meet with parents that you "know" online...don't. JUST DO IT! It's great to be among people that you don't have to explain anything to, they just know. The greatest thing i think i've discovered among my 'sisters' is that they are all similar in their love of human diversity...we should really be a PAC group, and start running this country...

My work week is now over It's abbreviated until Molly goes back to school-if you need to understand why..... refer to paragraph 1.

This morning Daddy left for an early morning meeting (or maybe i should say he ran screaming from his 3 day stint as single parent) and it's been fabulously quiet here. I LOVE BEING AT HOME!!

Molly slept in, and is now busying herself in the backyard. Shortly it will be way too hot for her to play out there, so we bypassed the prep (hair fixing-clothes donning..etc) and just let her run. I'm sure the lack of outside is most of the reason of her monkeying around where she shouldn't in the house! We'll swim shortly, have lunch, and THEN she'll be calm enough to scope on a movie, or painting, or books.

The new addition kitty has quickly made himself at home in our hearts..


He's playful, ornery,demanding, spirited, and FUNNY!! he takes up most of the camera room this week...the ONLY thing he has in common with the other the speed of his run when he hears Molly coming!! :-)


For our kids fighting cancer...Little Ben is fighting the worst of it right now, the proverbial "stripping" of everything cell his dna is prepare for the stem-cell's very painful. He remains postive, and my heart is breaking for his mommy....who can only sit back and watch the process happen. GOD!

and one of the adorable twins, who we thought was remission... just discovered active cancer cells in a chance spinal tap. GOD PLEASE!!


They are in Iowa City today, talking to doctors. There can be no more radiation, he's maxed out...and has already done the stem cell transplant.

Cancer has also stolen the life of Randy Pausch...the Carnegie-Mellon Professor who had the "Last Lecture" series (see youtube and get enlightened!) and also had Pancreatic Cancer.

Damn Cancer

There are too many moms mourning losses, and too many babies fighting the beast...please take time to pray, donate, and if you know a family dealing with this...offer,
ANYTHING....they need to know they are not alone. If you don't yet, you will.

And if you want to help ben and his family...visit them at
cp BenTheBrave

there is info in the "about me" section of his page of the church-family collecting the donations.

Kiss your kids, watch them like hawks...and hug them hard! Rejoice in every second you have with them....and honor them and their health, by reaching out to those that aren't as fortunuate as us.

Saturday, July 19, 2008

Lets bring a baby home

one of my online mom's is autioning off her blackberry curve to raise money to bring a little girl home via Reece's Rainbow.


her story is there...every $5.00 gets you a shot at it...and ALL going to Reece's..secured by paypal. She has set a goal of $500.00, but knowing all of sure we can blow that TODAY! (ends July 27th)Good Luck...tell her e sent ya...and YOU HAD BETTER NOT WIN MY BLACKBERRY!! hahahahahaha!

Friday, July 18, 2008

Family is Life

My kids are my life- i miss them so

There is so much to update, i can't possibly get it all done in one be patient over the next couple of weeks,and i'll try to catch up! parents drove down from nebraska (11 hours and they are in their 80's) to spend some time with us and meet thier new gg-baby. We had a wonderful time!


They surprised me by jumping the ladder and swimming everyday with molly (for safety, i still haven't decked around the pool) Then we all piled in my old Tahoe and headed to Springfield to meet Shauna who was flying in from DC. Her trip was horrible (united thru O'Hare) and her and her cat ended up spending the night in the airport....but she managed to shake it off, catch up with friends, and party with us!!


Little Bill came up from Arkansas, and we all camp'd at Gabes....miss molly was in 7th heaven surrounded by all of her sibs!


G-ma (that's ME! hahahah) babysat while big sis and bro...took little bill out and properly celebrated his 21st birthday in young adult
fashion....i am relatively sure that bill will never, ever drink alcohol again.

Shauna got to let go of all the stress and movin&shakin she does in the district, and stayed lit up-hilarious-and so very entertaining the entire time she was home...and gabe and ally went overboard with their hospitality.

There were some tears as we all headed to our respective homes


all but bill who took a few days and came home with us...but especially with shauna...not that she was going to miss US....but that she was bringing "Hattin the Cat" home to stay with me. (his name is a twist on the Dr Suess's book...cute)


He wasn't handling being alone at home so much...with her increased schedule...and she thinks he'll be happier here. I'm not sure of what his "pet nanny" was seeing, but i do know he is VERY happy in the ozarks, with lucifer the old man cat...and 'the boys' the german shep &the choc lab! They also did not want to see my mom and dad leave, and made it clear to us all.


goofy dogs have never seen a trunk...we have a pickup...the Tahoe...and a van! Cracked us up when we tried to load my folk's car for the trip home!

Hattin beats up the boys daily and they are scared stiff!! We roll laughing at his antics and are pleased at the spark this Yeti sized Yellow cat has brought to our home.

After we got home from Springfield, Bill had his brother Josh, his wife, and their beautiful babies over for a swim and a bar-b-que..and it was wonderful having my house full of kids and noise again. Josh and Bill are soooooo much alike both in looks and in attitude, and romp now, like they did when they were much fun!


With so much going on...we kind of skipped my birthday, but the sarge made up for it this week by upgrading my ride. I think i may have converted the FORD man, cuz we got another Tahoe! YAY!


All in happened too fast, and i awoke to quiet...wayyyyyyyyyyyyy too quiet this morning. Molly cried when the kids all left, and that broke my heart...but she knows it's only temporary....and one day we'll all be together again!! I cannot WAIT!!

I'll leave yall with a couple of my favorite shots from the weekend...daddy showing molly just how to take care of a baby.




Kiss your kids, and relish your time with day sooner than you can ever imagine..., your time together will be not often enough, and too short in duration