wow....still reeling i guess. Still getting used to having a kid on the spectrum. I heard a mom refer to her denial & depression of the Autism as "Pre-Diagnosis" and laughed. I knew just what she meant.
She KNEW that her child had fallen onto that spectrum we had heard so much about, but wasn't doing anything to hurry along a diagnosis. Some parents want to know, they need a reason, and i think those are mostly the parents of NTs. Those of us that have a kid already born with designer genes, don't want another dx.
Then, i got the dx. (that's diagnosis for you NT parents) (NT= "neuro-typical" for everyone else..hahahah or "typpies" as i say, as in "my other kids, who are all typpies") Yes, we have our own language.
I had a great team at school. They saw it happen, too...and started making adjustments for it while waiting for me to catch up. We started referring to it as "the A word" in IEP meetings. This started happening the summer between 5yrs and 6. In between the two times she attended Kindergarten. I thought she was angry because we held her back....and hung to that reasoning for 2 years.
Then we contacted an Autism specialty group called Judevine, later bought by a bigger group and renamed Touchpoint. I am still happy we went this route...as they sent a trained eye out with a camera...filmed the testing, and then took it back for review by other experts. It took 6 weeks to get their results back, but the day the envelope came (Larry opened and read, just nodding at me) I got phone calls from all over the state. Technicians wanting to come in and teach us how to teach molly, support, and technical advising. They were wonderful.
I was not wonderful. I cried for a year every time i tried to verbalize the word Autism. Every single time.
That is when the blogs slowed down. you know, if you can't say something nice.........
Then i saw this statement from the blogger group:
A couple of weeks ago, someone somewhere googled “I Wish I Didn’t Have Aspergers”. The phrase popped up in a blogging dashboard and struck the blogger as being particularly sad. She wished she could have answered.